Saturday, July 01, 2006

Life marches on!

I can't believe I forgot to post about my last doctor appointment and scans. The truth is when I finished treatment I didn't want anything more to do with anything cancer! Not even this blog.

Much time has passed, but I'll briefly fill in the details.

Had PET and CT scans. I am officially NED!! That's a good thing. It means no evidence of disease. I saw the onc and he gave me this wonderful news, told me to come back in three months and asked if I had any questions or problems. That's when I explained to him about the prickling/itching nerve-endings-firing thing I have now when I either get stressed or too hot. (Lord help me make through Louisiana summer - which is going to be all year round with the global warming that G.B. says doesn't exist). His response (a-hole) was, say it with me, "Chemo doesn't cause that." He said he gets that all the time if he wears too many sweaters, etc, blah, blah, blah. I told him it wasn't prickly heat, which is what he was implying, but he didn't believe me. "Yes, yes," he said, "That's happens to everyone."

"No," I said, "This isn't like that." But he doesn't listen. We were very close to raising our voices at each other. I simply have to find a new onc. On the day I should have been elated with the news I left his office frustrated. This cannot be good for my health.

I also saw my nephrologist. Good news there too. It looks like my creatinine is staying at about 1.4 which is a bit high for normal kidneys, but nothing to worry about it. It had gotten all the way up to 1.9 while on the chemo and there was some fear the chemo might do permanent damage. My cholesterol is still high, but I can't take the meds because it affects my liver function. Let's face it, I got a lemon for a body. I think the key to everything is going to be to lose weight.

The months have passed by. Jeremy graduated from high school, which nearly proved to be my undoing. THIS, not cancer treatment, is what caused me to need antidepressants. Can you believe it? He'll be going away to college in less than two months. I keep telling myself I should look forward to having that back room for myself, but I'm still quite anxious about the whole thing. I should have had more children! Or not!

I've gone back to 10 hr days/4 day weeks at work. They gave us Monday, July 3 off just because we have the 4th off. That gives me a 5 day weekend, Friday-Tuesday. Can't beat that!

Next Thursday it's time for my follow-up with the radiation oncologist. I'm going to ask him to recommend a new chemo onc to replace Dr. No-Bedside-Manner. I've got to pick one soon or go back to the old guy as July is my third month.

I think I'm shaking most of the chemo-brain problem. I'm able to think again and remember words and I haven't stuttered in a while. Judging by Luke's reactions I'd say my sense of humor is normalizing too. I tried to hang on to the humor while going through this, and I believe the experience of it would have been worse without it, but I did lose my quickness and some of my wit. Now I'm wise-cracking again and Luke is saying things like, "THAT'S my Dawn! I knew you'd come back!"

The good thing that happened today: They had soft pretzels for sale when we went for groceries this morning, which was good because we hadn't had any breakfast.

Things I want to do: I still want to sky dive and parasail. But most of all I want to get physical again and get back into shape.

3 comments:

Kathy said...

Woooooo Hoooooo! Hot Diggity! NED is such a wonderful thing to hear. Congratulations.

Dawn said...

Thanks Kathy!

Anonymous said...

I am the mother of an only child (a son) and I panicked when he graduated and went to college too. I joined WAY too many committees etc., stressed myself out completely. So once I extricated myself from that, I discovered I LOVE having an empty nest... I love my child, but when he comes home for vacations it disrupts my whole new routine! Plus I have to cook, and watch dumb tv shows :-).

So, I think you'll be ok!